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laine | profile | all galleries >> Galleries >> 2010_to_2020_a_journey tree view | thumbnails | slideshow

Emily's Journey in 2010 began on January 1st when in early hours of the morning she became suddenly very ill.
Later that day she was diagnosed with suffering Infant Accute Lymphoblastic Leukaemia...she was 4 days short of her first birthday & that of twin sister Jorja

This is not a complete journal as so much has happened that I have not recorded...I like to look at this as a work in progress, Emily's progress,as she moves toward full restoration of health & a long life ahead.

She began a high maintenance chemotherapy program on January 3rd 2010 this ended when Emily suffered a sudden downturn in health followed by a spinal paralysis on July 24 2010

She commenced a low maintenance chemotherapy program on August 17 2010. This will continue until January 3 2012 just two days before she & Jorja celebrate their 3rd birthday.

Today is January 5 in 2012 It is the twins 3rd birthday....yesterday Emily completed her treatment and is happily still in remission and growing stronger with each day. A journey no infant, child or family should be faced with but when life throws bad stuff your way then all you can do is fight back..I can never stress the importance of supporting fund raising for hospital foundations who do such amazing things in so many ways. Doctor Andrew Hallanan and the team of specialists who move heaven and earth to save children's lives at The Royal Children's Hospital of Brisbane with their research. This is not the end of the journey just another phase...Happy Birthday sweetheart xxxx

It is February 2013 and the twins reached their 4th birthday on January the 5th. It was the first one they had celebrated with Emily being well. Emily still remains in remission from Infant Accute Lymphoblastic Leukaemia. Two weeks ago she and twin Jorja commenced their education by finally going to Kindie. Now Emily now has her full immunity back her life can be as normal as all other healthy children. Her lungs which were effected by a fungus during chemotherapy in 2010 are still not as healthy as one would like but recently she underwent an intensive daily routine of physiotherapy, antibiotics and other drugs to try to clean out what remained of MRSA and Influenza. A further scope into her lungs procedure will be repeated in the next couple of months to see if it looks as good as we are hearing...no persistant wet cough. She continues with daily physio and weekly antibiotics until the middle of the year. Hopefully this will protect her from the usual bugs children pick up when in groups. Thankfully test revealed she wasn't suffering Cystic Fibrosis which was another concern of her Oncologists and Lung Specialists. I will continue to update as she progresses.


It is January 27 2014. Last year in 2013 was a mixed bag of ups and downs for the children. Both are now confirmed Asthmatics and that for Emily on top of the terrible MRSA she carried in one lung was of great concern, but again the marvellous teams at the RCH did all they could to make her well. A few invasive tests into her lungs, physio therapy and high doses of antibioticts until finally a break through....in August her lungs showed it was gone. She does however bear scars on the lung and that will be monitered. Kinder was a joy, they had a lovely year, finally able to spend their days with other children. Of course there were the usual shared bugs but finally at the end of the year they were growing healthier with lots of saltwater swims and trampoline exersize before it became too hot. Tomorrow on January 28 2014 they commence school....for them this will be wonderful but for us adults it means the end of an era of babies and I suspect tomorrow morning there will be a lot of tissues used not by them, but by us, the parents and grandparents as we watch them head toward independence.

Today is 16/12/2014
The day we have waited for to hear the words from her Oncologist... " Emily is officially considered CURED she has the normal life expectancy of any other child her age because she did not relapse in the first 5 years of treatment
Today is 2nd January 2015 and it was 5 yrs yesterday on New Years Day since Emily became ill."

January 1st 2016
As I have done each year since the beginning of Emily's journey on January 1st 2010 I add
her progress as her journey to what we hope will be a long and happy life free of care and full of health.
She remains wearing the badge that says she is cured after her now annual visit to her Oncologist.
Growing stronger in her ability to push through it's a great feeling to have those difficult days behind her. She and twin sister Jorja will celebrate their 7th birthday this Tuesday 5th. All good news to begin the year with.

January 1st 2017
Another year has passed with all good reports. Year two report after her annual visit to Oncology places her at 7 years cancer free. Then the next best news from her Respiratory doctors was her compromised lungs have all but healed themselves in this past quarter....on Thursday they celebrate their 8th birthday....time to celebrate again !!!

January 5th 2018
Today the twins celebrate their 9th birthday and 8 years of remission for Emily.....happy and healthy, full of fun, life goes on.
Today is always extra special.

January 1st 2019
Nine years has past and she continues to be well, bright and happy. They will be 10 on January 5th and it's much anticipated

January 2020
They are about to enter their final year of Primary School, both happy and healthy. They celebrated the end of the long decade which began on January 1st 2000....we all did, happily it ended better than it began with Emily remaining Cancer free. Other issues are merely bumps in the road compared to how she began her journey.
Last year she fractured her pelvis but recovered quickly, amazing the hospital staff with her high tolerance to pain and resistance to pain medication...she will always impress me in ways she will never know.

Emily  and Jorja ~ 1st Birthday 5/1/2010 Royal Children's Hospital, Brisbane.
Emily and Jorja ~ 1st Birthday 5/1/2010 Royal Children's Hospital, Brisbane.
Emily 9/01/2010
Emily 9/01/2010
Emily 11/01/2010
Emily 11/01/2010
Emily ~ Day 11/1/2010
Emily ~ Day 11/1/2010
Together Jorja, Emily & Daddy 12/1/2010
Together Jorja, Emily & Daddy 12/1/2010
Emily 17th January  2010
Emily 17th January 2010
Emily 17th January 2010
Emily 17th January 2010
Emily 17th January  2010
Emily 17th January 2010
Emily
Emily
Emily on Australia Day~26/1/2010
Emily on Australia Day~26/1/2010
Emily still smiling January 26th 2010
Emily still smiling January 26th 2010
Emily in Remission 8.2.10
Emily in Remission 8.2.10
Happiness is ~ entertainment 13/2/2010
Happiness is ~ entertainment 13/2/2010
Emily and Shannon 19/3/10
Emily and Shannon 19/3/10
Emily 24.3.10
Emily 24.3.10
Emily and the Teaset 24.3.10
Emily and the Teaset 24.3.10
Twins 5/4/2010
Twins 5/4/2010
Emily 5.4.10
Emily 5.4.10
Emily 28.4.10
Emily 28.4.10
Emily 28.4.10
Emily 28.4.10
Away or Apart 28/4/10
Away or Apart 28/4/10
Yellow Camp Quality ~3/5/2010
Yellow Camp Quality ~3/5/2010
Emily 7/06/2010
Emily 7/06/2010
Help ~ Lennon, 1965~2/7/2010
Help ~ Lennon, 1965~2/7/2010
I'm so tired 2~ 6/7/2010
I'm so tired 2~ 6/7/2010
I'm So Tired - Lennon 1968 6/7/2010
I'm So Tired - Lennon 1968 6/7/2010
Jorja at Emily's Bedside 27/7/10
Jorja at Emily's Bedside 27/7/10
Emily, Royal Children's Hospital 1/8/10
Emily, Royal Children's Hospital 1/8/10
Emily 1/8/10
Emily 1/8/10
Emily day 18~ 9/8/2010
Emily day 18~ 9/8/2010
Cousins 15.8.10
Cousins 15.8.10
Emily and her gift 5/9/2010
Emily and her gift 5/9/2010
Emily's smile 9/9/10
Emily's smile 9/9/10
Jorja and Emily with friends 13/11/10
Jorja and Emily with friends 13/11/10
dual....4/12/10
dual....4/12/10
another set of twins 4/12/10
another set of twins 4/12/10
Kat and her baby kitten with Santa 4/12/10
Kat and her baby kitten with Santa 4/12/10
Home from Hospital 11/12/10
Home from Hospital 11/12/10
home from hospital 11/12/10
home from hospital 11/12/10
Emily taking the plunge 31/12/10
Emily taking the plunge 31/12/10
Cake for 2 on 5/01/2011
Cake for 2 on 5/01/2011
Emily 5/1/ 2011
Emily 5/1/ 2011
Emily 28 Feb 2011
Emily 28 Feb 2011
Portacath Removal  1 March 2011
Portacath Removal 1 March 2011
Portacath Removal Day 1 March 2011
Portacath Removal Day 1 March 2011
Portacath Removal Day 1 March 2011
Portacath Removal Day 1 March 2011
Portacath Removal Day March 1st 2011
Portacath Removal Day March 1st 2011
Emily
Emily
Emily and Jorja
Emily and Jorja
1.5.2011
1.5.2011
5
5
Shannon and Jorja
Shannon and Jorja
Primary Carers ~ Parents
Primary Carers ~ Parents
20
20
Mia and Emily
Mia and Emily
Emily and friends
Emily and friends
Emily Party Day
Emily Party Day
SSsssnake
SSsssnake
Z  with N and A
Z with N and A
The family and the snake
The family and the snake
white dove
white dove
twins, the magician and the dove
twins, the magician and the dove
super mums makeover
super mums makeover
super mums makeover 2
super mums makeover 2
.....just singin in the rain
.....just singin in the rain
Emily and Jorja
Emily and Jorja
Princess Emily
Princess Emily
Emily after going to theatre
Emily after going to theatre
Emily home from hospital
Emily home from hospital
Emily's Mother's Day Message
Emily's Mother's Day Message
Twins are 5
Twins are 5
Surprise
Surprise
We Two
We Two
Five Today
Five Today
EJ and JL
EJ and JL
We are 5
We are 5
E.J.
E.J.
A Day to Celebrate
A Day to Celebrate
Thank You
Thank You
Emily Jan 1st 2015
Emily Jan 1st 2015
2010
<< 2010 >>
Lil Elf - Emily January 2016
Lil Elf - Emily January 2016
A Picture of Health
A Picture of Health
We are 8
We are 8
Emily
Emily
Emily & Jorja
Emily & Jorja
Emily in the Garden 4/1/18
Emily in the Garden 4/1/18
Emily and Jorja 2/1/2019
Emily and Jorja 2/1/2019
Twins
Twins
Emily and Travis.
Emily and Travis.
My Grandma
My Grandma
Emily & Jorja
Emily & Jorja