Cornelia de Lange Syndrome (CdLS) Photo Gallery by Maurice Burke Photography at pbase.com

Cornelia de Lange Syndrome (CdLS)

Cornelia de Lange Syndrome, CdLS, is a very rare congenital birth disorder that affects children throughout the world as well as our granddaughter, Katherine. With the discovery of the genes that cause CdLS, it is now estimated that 20 to 30 thousand children in the USA alone have yet to be diagnosed. Early detection and intervention is critical for these children. If you see a child that displays similar characteristics to Katherine or any of the children in this gallery, please have a responsible party contact the CdLS Foundation at: 1-800-753-2357 - To learn more about CdLS, visit their website at: http://www.cdlsusa.org

THE PORTRAIT IMAGES DISPLAYED BELOW MAY BE DOWNLOADED FOR PERSONAL USE ONLY.




	Ali

















	Ali








Katherine	CdLS KIDS & THEIR FAMILIES

comment

jackg		06-Apr-2015 11:52
A very moving gallery. Makes me realise just how blessed I am, with my family.

dzemila		15-Mar-2015 20:06
Zovem se dzemila i imam curicu s cdls,ona je prekrasno malo bice,obozavam je.zanima me koji postotak takve djece govori. Iz hrvatske smo i nemamo neke veluke mogucnosti saznati detalje o cdlsu

Guest		15-Mar-2015 20:01
I have little girl ,she have cdls,she is vonderful child,sorry on may vrong englesh,i live in croatia and i don'n speake english,

Kristin Dechant		16-Jan-2015 12:31
I've had the pleasure of spending time with sweet Katherine as a substitute at her school. She is such a sweet and beautiful little girl. I absolutely adore her!

Sarah S.		05-Dec-2013 18:06
I have never heard of this syndrome, thank you for bringing awareness.

Paul Bullock		02-Sep-2013 20:31
Thank you for bringing awareness. I have never heard of CdLS.

joseantonio		02-Sep-2013 20:25
What a lovely and wonderful gallery. Very nice work.V.

Chandra Sanchez		17-Jul-2013 22:28
Love this gallery! I have Amerah who has CdLS she will be four in December!

Donna Crook		10-May-2013 19:54
These photo,s were lovely to see I notice my own daughter in so many of them her name is sierra she is 8 years old with suspected cdls still can't give me a finale diagnose even though they are 90 percent sure her piediatic doctor is amazing she is always having to have tests but can't wait for that final diagnoses if I ever get one for her as physio earn,t sure what physio to give wlth out knowing what she has thank you foe listening just need to rant every now and then from Donna in the u.k

Markus Grompe		29-Apr-2013 13:35
This is a very nice gallery. I am a medical geneticist and really enjoy the human face you put on this "syndrome".

Neo		19-Mar-2013 12:48
My name is Neo Nkuta from South Africa,gave birth to a beatifull girl a month ago 21/01/13 with Cdls.wow touched.

Anna		12-Feb-2013 18:43
Hi, my name is Anna Batiz, I'm from Hungary. My cousin, Ince, has Cornelia de Lange Syndrome. He's a 7 year old boy, he is very cute little boy. I am making a school project about CdLS and I would like to ask for your help. I would like to ask some questions and I would be glad if you answered. When and how did you discover that your child has a problem? Did it have any consequences in the close or extended family? Had you hear about this syndrome before your child was born? Do you usually meet parents in similar situation to yours? How often? Which child is has the syndrome in your family (the first, last, etc)? How dos his/her brothers or sisters relate in what him/her? What is it different to bring up a child with Cornelia de Lange syndrome? What kind of treatments or therapy do they get? If he/she is an only child would you like to have other children? Why? Do you give any support from the state? If yes, what kind of support is it? Do people notice that your child has a CdL syndrome? And how do they react? If you are willing to help me, please send your answers via facebook or to my e-mail address (batiz.anna@gmail.com). Thank you for supporting my project.

Sheryl Chacon		17-Jan-2013 01:57
Keep up the good work that you are doing for these children! Your photographic skills in bringing attention to this disease is well commended.

Paolo Peggi (aka Bracciodiferro)		12-Dec-2012 21:23
Good work,thanks for sharing us.With love for all of these little friends. Paolo

Mar�a Cano		25-Mar-2012 19:49
Wonderful initiative and work in this gallery. Thanks so much for sharing it and the Foundation.

John Cravatta		12-Aug-2011 11:13
Your portrait work is artistic and very well done!~V~

Bill Klein		28-Jun-2011 13:15
Thank you for opening your heart and capturing these angels.

Mima Anderson		10-May-2011 14:15
my daughter was one of these very special children, born in 1966 , sadly she died in her 17th year, As a family we were blessed to have had her in our lives.

Rick Bricker		15-Apr-2011 04:10
Your gallery of these special kids is a real work of love.What a job you did! I've sent this link along to my daughter who is a special needs teacher.

Jola Dziubinska		17-Mar-2011 11:30
Very special and touching gallery, you did a wonderful work, Maurice. V.

RUANO		16-Mar-2011 00:05
Very, very good job. Congratulations. Big Voted!!!!!!

Guest		14-Mar-2011 17:08
Nobel work. More than just well done. VVV Lee

Stewart Oliver		09-Jan-2011 15:48
This is a very nice gallery. They are indeed God's little angels.

Jan Bakker		12-Nov-2010 17:22
I had never heard of this syndrome before, so I searched for information with a little help from Google. Dispite of this syndrome, this is a beautiful gallery. You photographed the children with dignity and an intense beauty. Bravo! V!!

Guest		01-Oct-2010 00:10
I was looking at these pictures, and they brought tears to my eyes..... the children are so beautiful....I have worked with a child with CdLS, and he brings a smile to my face every day I see him! God bless!

Caroline Posey		19-Jul-2010 13:36
Enjoyed looking at the web page, My brother was one of these special children, he lived for 17 glorious years before we lost him to meningitis. Thankyou for letting these little angels shine by featuring their photos! Caroline

Tamara		20-May-2010 07:27
My name is Tamara from South Africa. My sister Robyn has CDLS. These photo's brought tears to my eyes, they are all so beautiful. My sister is turning 17 now and its been 17 hard but absolutely wonderful years. Keep the faith.

Greg Chudzik		04-Feb-2010 20:09
Our daughter, Kate Maureen, was born with CDLS in 1970. While at the "bad" end of the spectrum, we were fortunate to have her with us through 1996. A greater blessing is not possible. Thank you for your work to have more people recognize CDLS and become involved with the Foundation.

Christy		05-Jan-2010 05:53
Beautiful pictures, very touching. Thanks!

brian		11-Sep-2009 22:39
We were at the 2008 conference with our daughter Hannah (her picture is in your gallery). It was a wonderful experience and your pictures show the world how beautiful and special these children are.

Debra Rogers		02-Sep-2009 23:19
My little girl Emmaleigh has Cornelia de lange and I thank God for her she is my pride and joy.

susan shuff		21-Mar-2009 00:55
what a beautiful gallery of beautiful children . my grandson mason has cdls and i am continuing to learn so much .

Elena		22-Jan-2009 03:35
Outstanding , touching gallery! You did great work! Thank you!

Dee		22-Dec-2008 01:46
my niece has CDLS the doctors told us that she wouldnt live to be 1 yr old she proved the doctors wrong she is going to be 22yrs old in February of 2009 we took her gambling on her 21st bday she had a Great time and she also just graduated from high school we are so proud of her :)

selinab		02-Oct-2008 20:40
Wonderful gallery. So touching. Thank you.

Guest		01-Oct-2008 01:48
I work with a man with Cornelia de Lange Syndrome, he is the coolest person I know, his heart is pure and I am lucky to have him in my life. I looked at all these children with Cornelia de Lange Syndrome and they are just beatuful children. There parents are blessed to have them in there lives. J Soto Phoenix Az

Guest		29-Sep-2008 18:03
they all are wonderful and you did a great work.

Dawn Stevens		07-Sep-2008 14:11
Never heard of CdLS until a friend of mines son was born with it. He is a very sweet and cute. I wish there was something that we can do to prevent this from happening to so many children. Mason Gilbert is his name and he is such a blessing. Dawn Stevens, Schererville Indiana

Guest		21-Apr-2007 01:09
There is so much love in these photographs. These children are beautiful

arminb		14-Jul-2006 21:29
pfewww, it drives tears into my eyes - thanks for reminding!!!

Pauline		11-Jul-2006 12:22
Why? Why not!?! All children are Gods little angels.

Tom (UK)		25-May-2006 22:54
All children are beautful thank you for sharing you photographs

Louise Hamelin		26-Aug-2004 12:27
Maurice, To your shining heart, I am offering you this starfish story (author unknown) thinking you must be this "person" in the story... Once a man was walking along a beach. The sun was shining and it was a beautiful day. Off in the distance he could see a "person" going back and forth between the surf's edge and and the beach. Back and forth this person went. As the man approached he could see that there were hundreds of starfish stranded on the sand as the result of the natural action of the tide. The man was stuck by the the apparent futility of the task. There were far too many starfish. Many of them were sure to perish. As he approached the "person" continued the task of picking up starfish one by one and throwing them into the surf. As he came up to the "person" he said, "You must be crazy. There are thousands of miles of beach covered with starfish. You can't possibly make a difference." The "person" looked at the man. He then stooped down and pick up one more starfish and threw it back into the ocean. He turned back to the man and said, "It sure made a difference to that one!" Thank you for making a difference and this world a better place. Louise

Guest		09-Mar-2004 04:04
I, too, am touched by your choice to recognize the beauty beyond this disease. You elevate the families and encourage others by your photography. May God bless you.

Aurora Vanderbosch		26-Jul-2003 01:01
What a terrible thing that children can be affected by things like this! It is wonderful, though, to have people like yourself showing the beauty of these little ones that we might otherwise overlook. Thank you for taking the time to do this!

Denise Dee		18-May-2003 14:15
one, two, nine and ten. had me going back to look again and again. it is a difficult thing i think to capture this kind of beauty in a photo. i've seen people try, but self-consciously (excuse my poor wording) here i am not aware of you. i love these... denise

Wai Cheong Patrick Wong		25-Apr-2003 09:54
These are beautiful children, and thank you for sharing with us.

Guest		02-Apr-2003 14:17
very good work, best regards magus

Hannie		01-Apr-2003 23:05
Thanks Maurice for these special and touching pictures.

Guest		13-Nov-2002 01:13
These are little beautiful souls that you've captured and shared. Thank you.

Guest		14-Oct-2002 11:39
rarelly a pics can move my feelings like these children's pics did. sorry for the bad English :-) ciao ciao _R_ http://www.pbase.com/lupoalberto

Guest		03-Oct-2002 22:10
I think of my autistic son when I see these and am deeply moved. Thanks.

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